Today was another good day. I am continuing to see baby steps in Lynn's progress. He is opening his eyes to less painful stimuli more frequently. He still looks as though nobody's home and he only keeps them open for a couple of seconds, but it is occurring more frequently. I feel we are getting closer. Also, they have decided to replace his very expensive Sodium Phenylacetate ($15,000 a bag per day) with the oral version to be put down his dobbhoff tube which is a lot less expensive. Let's hope that his digestive tract can absorb and his ammonia levels stay down. If we are successful with that, we will introduce the next thing. The doctors are wanting to make only one change at a time so they can see what works and what doesn't. I look forward to seeing what baby step Lynn makes tomorrow.
Tuesday, March 9, 2010
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1 comments:
Hooray! Lynn has so much to wake up for...baby steps are awesome!
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